Category: Lupus And Fibromyalgia

The Patient-Artist Experience

8/26/2019

I've been invited to join a group exhibit with the Pauly Friedman Art Gallery, Misericordia University, Pennsylvania. Co-Curated with Ted Meyer, 'The Patient-Artist Experience' is on exhibit now, in the Trocaire Building.
Exhibit runs August 26 2019 - May 31, 2020

Created in 2014, 'The Lines Unread' is a mixed-media work in ink and acrylic, layered over one of my own original poems. The original work is 14"x'11" on canvas; a print of this work has been sent to Pennsylvania for the exhibit. The original work appeared in Los Angeles, as part of my solo exhibit with the UCLA Geffen School of Medicine, 'Forward Motion.'

This work is part of an ongoing series, titled 'Silence.' See more photos in my gallery.

This body of work examines the ongoing transformations in my life, and my work, as a result of living with Lupus and Fibromyalgia.

The works in this series are all mixed-media; inclusions of graphite and ink are particular allusions to loss of function in my hands: Before my illness, pencil and pen were my tools of choice; as my illness progressed, use of such fine instruments became more difficult and painful. At that time, I let go of keeping a daily sketchbook and handwritten journal, and turned instead to more abbreviated art forms, which required less strain on my hands --abstract sketches in crayon, and poetry. As I regained some function in my hands, I re-learned to paint, and re-worked many of the early crayon sketches into paintings, on canvas. Several works in this series have my poetry from that time, written in pencil, ink, or both, beneath or between the layers of acrylic gesso and paint.

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Forward Motion

2/21/2015

On February 20th, as part of my exhibit with UCLA Geffen School of Medicine, I gave a talk to the students, in the Gallery at the Learning Resource Center. Below, are some of the notes from my talk, re-worked into a blog. Photos of the talk, portfolio photos of my artwork, and work from our Pas de Berlin series are courtesy of Todd Powers.

My name is Jen, I am a professional artist, and I live with Lupus and Fibromyalgia.
I became symptomatic at age sixteen; I was diagnosed at twenty-seven, and I have since spent the last ten years learning how to navigate a relationship with my illness.

That it is a relationship, or that it can be seen in that light, is a fairly new concept for me; in the early years following diagnosis, I approached Lupus more as a battle to be fought, and initially this was helpful to me (it’s far better to fight, than it is to simply give up). But recently, I’ve been learning how to engage this facet of my life in a more productive manner.

I continue to be surprised at how helpful it actually is --helpful for me and for those around me-- to actively engage this subject: It is helpful to paint about my illness, write about it, talk about it, create conversations about all the ways this illness influences my life and my choices on every level.

For too many years, I’d deliberately avoided doing any of that --Lupus was already taking so much of my time, and I resented it. Lupus had already stolen so much of what used to be my life, and I was angry about it. I wasn’t willing to give her anything she wasn’t already taking from me, by force. I didn’t even want to talk about it.

It took me a long time to see the extent to which my relationships with my illness reflected my relationships with myself, right down to the avoidance, the anger, and the resentment. I realized then, that I had a lot more to work on than just the physical aspects of chronic illness: I needed to do more work on myself, as a person --and along the way I discovered that doing this kind of work, to better myself emotionally, resulted in my doing better, physically. Intrigued, I continued along these lines, and have since continued to improve.

Through my work (painting, writing, assemblage, and collaborations), I began to explore the ways my illness was re-shaping, and forcing me to more closely examine, all of my relationships --with my body, within my mind, and also, my relationships with others.

My relationship with my body

‘The Lines Unread’ belongs to my Silence series. This body of work examines the ongoing transformations in my life, and my work, as a result of living with Lupus and Fibromyalgia.

The works in this series are all mixed-media; inclusions of graphite and ink are particular allusions to loss of function in my hands. Before my illness, pencil and pen were my tools of choice; as my illness progressed, use of such fine instruments became more difficult and painful.

At that time, I let go of keeping a daily sketchbook and handwritten journal, and turned instead to more abbreviated art forms, which required less use of my hands --abstract sketches in crayon, and spoken word --performance poetry.

In addition to the figurative sketches in ink and pencil, many of the works in this series have my poetry written in pencil, ink, or both, beneath or between the layers of acrylic gesso and paint. ‘The Lines Unread’ is the title of my poem, within the painting, bearing the same name.

My relationship with my mind

'‘To Anger’ is part of my Dine-in,Take-out series. The origins of this series reside in a loose collection of abstract crayon sketches, created in 2004 and 05 --the time when my function was most impaired, and sketching often required controlling a single crayon with both hands. Economy of line was critical,

requiring me to work in more direct, less detailed, techniques. Such blunt visual communications left me little space to equivocate, and forced me to terms with emotions long interred, and issues which I had been previously unable to tackle with any honesty.

Lupus and Fibromyalgia forced me to stop --physically and mentally-- for the first time, in my life. Before chronic illness, I had not realized the extent to which I was being driven, by my own pain, anger, and avoidance. The crayon sketches helped me to work through some of that. In 2011, recreating the crayon sketches into paintings helped me to work through a bit more. Writing about this series, at the present, I find myself doing that work, yet again.

My relationships with others

‘The Fruits of Self-Compassion’ belongs to my ongoing narrative series, Reaching. Unlike the works of previous series, which look to the past, Reaching is firmly established in the present, with an eye to the future. The characters in this series express forward motion --reaching for that which is higher, within themselves and in their environments.

As visual elements, the exaggerated shapes and sizes of the hands in these works communicate the complicated relationship I have with my own hands: I no longer take my hands for granted.

I am keenly aware, day-to-day, of what my hands can do --I find myself carefully planning each day’s activities, and routinely mapping out entire weeks or even months in advance; I do this not only to make the best use of my hands, but also to allow for energy levels, mental acuity, and pain management.

There was a time when I didn’t think I’d ever regain function, especially not to this extent. I am deeply grateful for this, and always mindful of what it means, to have hands, and to be able to use them.

Also present in this series are themes of growth, from within. Each of the works in Reaching is inspired, in part, by a particular relationship in my life, which has endured and grown stronger in spite of, or because of, my illness. Life with chronic illness has taught me many valuable lessons, including who my true friends are, and what my true priorities have become. I have also learned how to ask for help; that has never been easy for me. More importantly, I've learned how to receive help --not the same thing.

Forward Motion

In addition to my ongoing solo projects in acrylics and assemblage, I've begun a series of collaborative concept photography projects, with fellow artists in various fields who also seek to tackle painful personal issues through their work.

These collaborations have been highly rewarding: Through these projects, we seek to encourage a determination, within ourselves as well as others, toward courage, healing, and forward motion.

Photos on exhibit with Forward Motion include selections from Pas de Berlin, a series in concept photography, spanning twelve months of collaborative work themed on a seven stage model of the grief and healing process.

The full series guides our viewers through eight different landscapes, breaking down the various stages of grief into visual elements, and creating a narrative of courageous recovery.

Currently on exhibit, are photographs from two of our eight separate sets: Efface, a dance terminology ('shadowed'), describes the frightening pain and guilt often referred to as the second stage of seven; Epaulement ('shouldering') explores the fourth stage --heavy feelings of sad reflection, isolation, and depression.

Pas de Berlin Contributing Artists:

Jen Raven ~ Creative Direction, Concept Artist, Costumes, Properties
Todd Powers ~ Photography and Editing
Ande Castaneda ~ Makeup and Hair Artist
Berlin ~ Dancer / Model

Special thanks to Ted Meyer, Artist in Residence at UCLA Geffen School of Medicine; and to LuAnn WIlkerson, Assistant Dean of Education, UCLA Geffen School of Medicine.

Artist Jen Raven, and LuAnn WIlkerson, Assistant Dean of Education, UCLA Geffen School of Medicine.

The Patient-Artist Experience

Forward Motion

My relationship with my body

My relationship with my mind

My relationships with others

Forward Motion

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